post_top3Welcome!!!!

Just after my son was diagnosed at 14 months, I was at a La Leche League play date. Most of us were entering our second year of motherhood and the dark circles and droopy energy showed. We all began talking about the family bed and how, though we all felt it was the right thing to do, we were plum tuckered and, quite frankly, tired of getting kicked by our rapidly-growing spawn. When I, too, made the comment about how tired I was of getting kicked, one of the women turned to me and said: “At least your kid has CP. At least you ‘re not getting kicked.” Yes, she did. I responded: “Wow. You ‘ve never been kicked by a spastic child before. Good for you.”

In a way, I thank her. To this day. I really do. Because it was a head-long swan dive into what was to come and I was glad that it happened in what was a generally warm group of women and at a time when my son was too young to understand what was being said. It woke me up to the fact that I was going to have to toughen my skin up quick, be en garde with politely stern answers and prepare my son for what was to inevitably come. But that doesn’t mean we can ‘t complain a little, yes?

So, this is the place to let your hair down and have a good squawk. Share your crazy special needs mom story so we can all shake our heads in disbelief and chuckle. Do it here among friends who get it. All comments will be moderated and naughty, mean-spirited posts and comments will be terminated with extreme prejudice (oh, and love, of course…) And lastly: laugh really, really hard.

Poo

When we become parents we know there are givens. We know we’ll be up nights with inconsolable crying. We know there will be bumps and bruises. We know there will be first smiles and first teeth. And by God, we know there will be Poo. Add animals to the mix and... read more

The Best is Yet To Come

Mom, I want a dog. My then six-and-a-half year old son Cole loved pirates and firemen and Gilbert and Sullivan and history. He also had cerebral palsy and used a wheelchair!and he wanted a dog. Having lost my golden retriever to cancer a few years’ prior, I was... read more

Ticket To Ride

It never ceases to amaze me what people will say to the disabled and their caregivers. And one of the toughest things this community faces is prejudice against people with disabilities you cannot see. Turns out if you can’t see ‘em, you must not have ‘em. A... read more

The Conversation

Ilia is a beautiful Labrador Retriever with a shining black coat. He is also a notorious bed pig. All night long he thinks of sneaky ways to make sure his human, a boy named Cole, gets as little of the bed as possible. He has to hide his head beside the pillow so you... read more

A Little Bit Perfect

Cerebral palsy. Cole has cerebral palsy. I blinked at the doctor in a daze. This beautiful, gurgling, cooing, cherub-cheeked baby in my arms was flawed. Damaged. No longer perfect. What? Then came the dizzying cavalcade of expert opinions and their dire predictions.... read more

Home Alone

Sssssooooo! Today marks the second day that my son has been gone at sleep-away camp. This is his first time ever and I must say: he’s handling it far better than I am. I was really quite surprised by the mix of emotions his absence brought up in me. While I... read more

Watered Down: A Dog Walking Tail

While walking my dog Ilia one morning, I run into our lovely neighbors Bea & Barry and their cadre of 5 (!) dogs. “Let ‘s go down to the river!” Bea suggests. Sounds good, I say, and off we go. Upon arriving, Barry notices a guy tossing stuff... read more